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🔔🦋🧬 (EB)RP Updates

Earlier this month, EBRP was proudly joined by members of the EB and rare disease…

EB Research PartnershipThursday, Sep 17, 2026 at 8:45 AM EasternKlaviyo
EB Research Partnership🔔🦋🧬 (EB)RP Updates
Subject
🔔🦋🧬 (EB)RP Updates
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Earlier this month, EBRP was proudly joined by members of the EB and rare disease…
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info@ebresearch.org
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Thu Sep 17, 2026, 8:45 AM ET
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ebresearch.org, ebresearchpartnership.org, give.ebresearch.org, jgsf.org, ventureintocures.org
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18 characters

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From
EB Research Partnership <[email protected]>
Subject
🔔🦋🧬 (EB)RP Updates
Date
Thu, 17 Sep 2026 12:45:17 +0000
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klaviyomail.com
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k3.send.ebresearch.org
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Sent just before and after

Oct 9, 2026 3:36 PMWelcome to Team EBRP! 🦋
Oct 1, 2026 10:23 AMDive Into EB Awareness Week: RSVP for 10/27 Town Hall!
Sep 23, 2026 12:30 PMPain doesn't take a day off 🦋
Sep 17, 2026 8:45 AM🔔🦋🧬 (EB)RP Updates (this email)
Sep 16, 2026 3:45 PMTwo months to go . Hope is taking shape. 🦋🔬
Aug 26, 2026 12:30 PMMake a trip of it in New York 🦋
Aug 26, 2026 12:30 PMYour Venture Into Cures weekend, planned 🦋

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