EB Research Partnership subject lines
49 subject lines averaging 33 characters.
| Picture | Sent (Eastern) | Subject | Characters | Preview text | |
|---|---|---|---|---|---|
| Nov 2, 2026 7:00 AM | Meet Jacob 🦋❤️ | 13 | Meet Jacob 🦋❤️ | Nov 2, 2026 7:00 AM · 13 characters. Meet Jacob 🦋❤️ | |
| Oct 31, 2026 4:05 PM | Meet Jacob 🦋❤️ | 13 | Meet Jacob 🦋❤️ | Oct 31, 2026 4:05 PM · 13 characters. Meet Jacob 🦋❤️ | |
| Oct 30, 2026 2:59 PM | friend, EB Awareness Week ends tomorrow 🦋 | 41 | Thank you for every story and hope you’ve shared. Every gift is still doubled. | Oct 30, 2026 2:59 PM · 41 characters. Thank you for every story and hope you’ve shared. Every gift is still doubled. | |
| Oct 26, 2026 12:00 PM | Don't Miss Tomorrow's Town Hall! 🎉 | 34 | Register below to join us for tomorrow's Town Hall! We're looking forward to hearing from… | Oct 26, 2026 12:00 PM · 34 characters. Register below to join us for tomorrow's Town Hall! We're looking forward to hearing from… | |
| Oct 23, 2026 8:00 AM | 🦋🫶🌊 (EB)RP Updates | 18 | EB UPDATE 🦋 EB Awareness Week is almost here! Next week, we're coming together to amplify… | Oct 23, 2026 8:00 AM · 18 characters. EB UPDATE 🦋 EB Awareness Week is almost here! Next week, we're coming together to amplify… | |
| Oct 20, 2026 11:31 AM | One More Week: Register for EBRP's October Town Hall | 52 | Our October Town Hall is just one week away! Register today to join us and celebrate EB… | Oct 20, 2026 11:31 AM · 52 characters. Our October Town Hall is just one week away! Register today to join us and celebrate EB… | |
| Oct 18, 2026 7:59 AM | Make an impact for rare disease 🦋 | 33 | Support the work of EB Research Partnership | Oct 18, 2026 7:59 AM · 33 characters. Support the work of EB Research Partnership | |
| Oct 16, 2026 4:04 PM | Make an impact for rare disease 🦋 | 34 | Support the work of EB Research Partnership | Oct 16, 2026 4:04 PM · 34 characters. Support the work of EB Research Partnership | |
| Oct 16, 2026 7:58 AM | Welcome to Team EBRP! 🦋 | 23 | Welcome to Team EBRP! 🦋 | Oct 16, 2026 7:58 AM · 23 characters. Welcome to Team EBRP! 🦋 | |
| Oct 14, 2026 4:03 PM | Welcome to Team EBRP! 🦋 | 23 | Welcome to Team EBRP! 🦋 | Oct 14, 2026 4:03 PM · 23 characters. Welcome to Team EBRP! 🦋 | |
| Oct 13, 2026 10:15 AM | Two Weeks Away: Dive Into EB Awareness Week | 43 | Our EB Awareness Week Town Hall is just two weeks away! Register today to join us. We’re… | Oct 13, 2026 10:15 AM · 43 characters. Our EB Awareness Week Town Hall is just two weeks away! Register today to join us. We’re… | |
| Oct 11, 2026 3:37 PM | Make an impact for rare disease 🦋 | 34 | Support the work of EB Research Partnership | Oct 11, 2026 3:37 PM · 34 characters. Support the work of EB Research Partnership | |
| Oct 9, 2026 3:36 PM | Welcome to Team EBRP! 🦋 | 23 | Welcome to Team EBRP! 🦋 | Oct 9, 2026 3:36 PM · 23 characters. Welcome to Team EBRP! 🦋 | |
| Oct 1, 2026 10:23 AM | Dive Into EB Awareness Week: RSVP for 10/27 Town Hall! | 54 | EBRP is excited to invite you to dive into EB Awareness Week and join our October Town… | Oct 1, 2026 10:23 AM · 54 characters. EBRP is excited to invite you to dive into EB Awareness Week and join our October Town… | |
| Sep 23, 2026 12:30 PM | Pain doesn't take a day off 🦋 | 29 | This Pain Awareness Month, help fund EB research toward less pain and more options. | Sep 23, 2026 12:30 PM · 29 characters. This Pain Awareness Month, help fund EB research toward less pain and more options. | |
| Sep 17, 2026 8:45 AM | 🔔🦋🧬 (EB)RP Updates | 18 | Earlier this month, EBRP was proudly joined by members of the EB and rare disease… | Sep 17, 2026 8:45 AM · 18 characters. Earlier this month, EBRP was proudly joined by members of the EB and rare disease… | |
| Sep 16, 2026 3:45 PM | Two months to go . Hope is taking shape. 🦋🔬 | 43 | Hodges Caldwell Jr., real progress in EB, and what’s ahead this November. | Sep 16, 2026 3:45 PM · 43 characters. Hodges Caldwell Jr., real progress in EB, and what’s ahead this November. | |
| Aug 26, 2026 12:30 PM | Make a trip of it in New York 🦋 | 31 | Venture Into Cures is Nov 11. A little city guide inside, plus discounted hotel blocks. | Aug 26, 2026 12:30 PM · 31 characters. Venture Into Cures is Nov 11. A little city guide inside, plus discounted hotel blocks. | |
| Aug 26, 2026 12:30 PM | Your Venture Into Cures weekend, planned 🦋 | 42 | Things to do around the gala, where to stay, and everything for your NYC trip. | Aug 26, 2026 12:30 PM · 42 characters. Things to do around the gala, where to stay, and everything for your NYC trip. | |
| Aug 24, 2026 1:30 PM | NEW Speaker Announced: Join Our Town Hall Next Week 🦋 | 53 | Our August Town Hall is just one week away! Register today to join us. We're excited to… | Aug 24, 2026 1:30 PM · 53 characters. Our August Town Hall is just one week away! Register today to join us. We're excited to… | |
| Aug 20, 2026 8:30 AM | 🚀💛🧬 (EB)RP Updates | 18 | Introducing Rare Ventures, a first-of-its-kind venture philanthropy platform uniting EBRP… | Aug 20, 2026 8:30 AM · 18 characters. Introducing Rare Ventures, a first-of-its-kind venture philanthropy platform uniting EBRP… | |
| Aug 17, 2026 12:19 PM | Don't Miss Our Next Town Hall on August 31! | 43 | Our August Town Hall is just two weeks away! Register today to join us. Join EB Research… | Aug 17, 2026 12:19 PM · 43 characters. Our August Town Hall is just two weeks away! Register today to join us. Join EB Research… | |
| Aug 12, 2026 9:02 AM | A message to our EB families and community | 42 | Introducing Rare Ventures and what it means for EBRP. | Aug 12, 2026 9:02 AM · 42 characters. Introducing Rare Ventures and what it means for EBRP. | |
| Aug 5, 2026 12:00 AM | Their summers. Our reason to act. ☀️🦋 | 36 | What summer really looks like with EB, in their own words. | Aug 5, 2026 12:00 AM · 36 characters. What summer really looks like with EB, in their own words. | |
| Jul 27, 2026 12:56 PM | Don't Miss Today's Town Hall! | 29 | Join EBRP for an engaging discussion centered around life with EB Simplex & progress in… | Jul 27, 2026 12:56 PM · 29 characters. Join EBRP for an engaging discussion centered around life with EB Simplex & progress in… | |
| Jul 23, 2026 9:15 AM | 📣🧬🚀 (EB)RP Updates | 19 | EBRP is thrilled to share that we have approved seven innovative research projects… | Jul 23, 2026 9:15 AM · 19 characters. EBRP is thrilled to share that we have approved seven innovative research projects… | |
| Jul 22, 2026 1:30 PM | A record year for EB research 🦋🔬 | 32 | See the 7 projects your support just made possible. | Jul 22, 2026 1:30 PM · 32 characters. See the 7 projects your support just made possible. | |
| Jul 21, 2026 4:28 PM | Meet Jacob 🦋❤️ | 13 | Meet Jacob 🦋❤️ | Jul 21, 2026 4:28 PM · 13 characters. Meet Jacob 🦋❤️ | |
| Jul 20, 2026 10:30 AM | Don't Miss Next Week's Town Hall! | 33 | Join EBRP for an engaging discussion centered around life with EB Simplex & progress in… | Jul 20, 2026 10:30 AM · 33 characters. Join EBRP for an engaging discussion centered around life with EB Simplex & progress in… | |
| Jul 15, 2026 3:28 PM | Your invitation is here 🦋 Venture Into Cures 2026 | 49 | Join us November 11 f for special guests, live performances, and a few surprises. | Jul 15, 2026 3:28 PM · 49 characters. Join us November 11 f for special guests, live performances, and a few surprises. | |
| Jul 14, 2026 10:17 AM | Don't Miss Our Next Town Hall on July 27! | 41 | Our July Town Hall is just two weeks away! Register today to join us. Join EB Research… | Jul 14, 2026 10:17 AM · 41 characters. Our July Town Hall is just two weeks away! Register today to join us. Join EB Research… | |
| Jul 6, 2026 4:26 PM | Make an impact for rare disease 🦋 | 33 | Support the work of EB Research Partnership | Jul 6, 2026 4:26 PM · 33 characters. Support the work of EB Research Partnership | |
| Jul 4, 2026 4:24 PM | Welcome to Team EBRP! 🦋 | 23 | Welcome to Team EBRP! 🦋 | Jul 4, 2026 4:24 PM · 23 characters. Welcome to Team EBRP! 🦋 | |
| Jun 25, 2026 8:15 AM | 🦋🎨🧬 (EB)RP Updates | 18 | Our signature event is back in New York City this fall and we couldn't be more excited! We… | Jun 25, 2026 8:15 AM · 18 characters. Our signature event is back in New York City this fall and we couldn't be more excited! We… | |
| Jun 22, 2026 3:11 PM | Venture Into Cures Returns November 11 🦋 | 40 | Save the date for EBRP’s signature evening in New York City. | Jun 22, 2026 3:11 PM · 40 characters. Save the date for EBRP’s signature evening in New York City. | |
| Jun 15, 2026 10:15 AM | Join Us for a Special June Town Hall! 🎨🧬 | 40 | Our June Town Hall is just one week away! We hope you'll join us as we celebrate the… | Jun 15, 2026 10:15 AM · 40 characters. Our June Town Hall is just one week away! We hope you'll join us as we celebrate the… | |
| Jun 12, 2026 3:15 PM | One year of Matter of Time 🎬🦋 | 29 | From Tribeca to Netflix, Matter of Time has brought thousands closer to the EB community… | Jun 12, 2026 3:15 PM · 29 characters. From Tribeca to Netflix, Matter of Time has brought thousands closer to the EB community… | |
| Jun 8, 2026 1:15 PM | Don't Miss Our June Town Hall: Register Today! | 46 | Our June Town Hall is two weeks away! Register today to join us. Join EB Research… | Jun 8, 2026 1:15 PM · 46 characters. Our June Town Hall is two weeks away! Register today to join us. Join EB Research… | |
| May 29, 2026 10:15 AM | Don't Miss Our Next Town Hall on June 22! | 41 | Our June Town Hall is less than a month away! Register today to join us. Join EB Research… | May 29, 2026 10:15 AM · 41 characters. Our June Town Hall is less than a month away! Register today to join us. Join EB Research… | |
| May 28, 2026 11:38 AM | , our June virtual run/walk for a cure is here 🦋 | 48 | One year of Matter of Time. A global virtual run/walk. Lace up June 12. | May 28, 2026 11:38 AM · 48 characters. One year of Matter of Time. A global virtual run/walk. Lace up June 12. | |
| May 21, 2026 8:30 AM | 🦋🏃👟 (EB)RP Updates | 18 | We've just passed the 80% mark of the Matter of Time $1 Million Match! Made possible by… | May 21, 2026 8:30 AM · 18 characters. We've just passed the 80% mark of the Matter of Time $1 Million Match! Made possible by… | |
| May 11, 2026 6:36 PM | This isn't your typical baseball rivalry 🦋 | 42 | It's funding a cure for EB and you could win a one-of-a-kind jersey doing it. | May 11, 2026 6:36 PM · 42 characters. It's funding a cure for EB and you could win a one-of-a-kind jersey doing it. | |
| May 6, 2026 10:46 AM | Don't Miss Our Next Town Hall on May 19! | 40 | Our May Town Hall is less than two weeks away! Register today to join us. Join Chiesi for… | May 6, 2026 10:46 AM · 40 characters. Our May Town Hall is less than two weeks away! Register today to join us. Join Chiesi for… | |
| Apr 23, 2026 9:09 AM | ⚾🎵🦋 (EB)RP Updates | 18 | We've just passed the 50% mark of the Matter of Time $1 Million Match! Made possible by… | Apr 23, 2026 9:09 AM · 18 characters. We've just passed the 50% mark of the Matter of Time $1 Million Match! Made possible by… | |
| Apr 2, 2026 12:54 AM | Meet Jacob 🦋❤️ | 13 | Meet Jacob 🦋❤️ | Apr 2, 2026 12:54 AM · 13 characters. Meet Jacob 🦋❤️ | |
| Mar 26, 2026 8:30 AM | 🌊🎬🧬 (EB)RP Updates | 18 | The Matter of Time $1 Million Match is LIVE! Made possible by Dr. Jeff Heddles, every gift… | Mar 26, 2026 8:30 AM · 18 characters. The Matter of Time $1 Million Match is LIVE! Made possible by Dr. Jeff Heddles, every gift… | |
| Mar 18, 2026 12:54 AM | Make an impact for rare disease 🦋 | 33 | Support the work of EB Research Partnership | Mar 18, 2026 12:54 AM · 33 characters. Support the work of EB Research Partnership | |
| Mar 17, 2026 7:45 AM | Innovative Technological Approaches to EB: RSVP for 3/31 Town Hall 🦋🧬 | 69 | EBRP's March Town Hall is just two weeks away! Register now to join us. This month, our… | Mar 17, 2026 7:45 AM · 69 characters. EBRP's March Town Hall is just two weeks away! Register now to join us. This month, our… | |
| Mar 16, 2026 12:55 AM | Welcome to Team EBRP! 🦋 | 23 | Welcome to Team EBRP! 🦋 | Mar 16, 2026 12:55 AM · 23 characters. Welcome to Team EBRP! 🦋 |
Based on 49 emails received from Mar 16 to Nov 2, 2026. Times in US Eastern. How we collect